I should have listened

Okay, when S3 was born he had a very, very pointed forehead. When you looked down on his head from above, it was reminescent of the prow of a boat. If you looked at him in profile, his forehead stuck out PAST his nose. He was developing normally so I wasn't too worried although it did really bug me. But then a friend who worked with a cranial facial surgeon saw him and suggested he get checked out for metopic synostosis. I took him into the pediatrician to get his two cents. The doctor wasn't concerned and said that since his head was growing fine (kids with the disorder usually suffer a lack of cranial growth) that we didn't need to worry. Well, I was still concerned but didn't push for a referral to a specialist. As time went on S3 grew into his head a bit more, but still pointed. Now that he is over a year old his forehead no longer sticks out past his nose and his profile looks normal (other than having a very rounded forehead). But we went in for his 15 month check up and the doctor has decided that it looks worse than before and wants him to see the cranial facial doctors!!!!! I should have followed my instinct and insisted on a referral to a specialist. Instead I let myself doubt my feelings since the doctor had a different opinion. Note to self and others: next time speak up and remember, doctors are only "practicing" medicine!

Part of the reason this ticks me off is that surgery is best done when the kids are around 8 months to a year, so we missed the best window for surgery even though I brought it up when he was 6 months old. Second is that kids with this condition, although I think S3 just has a cosmetic case, can suffer facial deformity and mental impairment. AHHHHHHH!!!!!!!

Anyway, so now I am trying to get an appointment with a cranio facial specialis before our insurance changes at the end of the month! And our pediatrician said that if the bones in his forehead have already fused together that it's too late for surgery and he's be stuck with at least a pointy forehead. Thank goodness his development is on track so far. I'll up date you later.

The sad part is I really like our pediatrician but this makes me mad!